We spoke to the geneticist this afternoon, and he told us a TON of information about Carnitine and how a deficiency can cause the kind of heart condition that Hannah has. However, this is highly unlikely, as it would cause other kinds of muscular issues (not just the heart), and Hannah is perfectly fine EXCEPT for her heart. He said it could also be an enzyme deficiency, and we will get the final test results back later this week. The current long-term plan is to have her on oral medications to continue the treatment of her condition, while continuing to monitor her progress and reassess as necessary. This could eventually be done at home. Please pray that she is able to get off that last IV medication this week!
Even if this was caused by a genetic mutation (which according to scientific standards happen randomly), we know that this condition was not an accident and is not random. God has a purpose and plan behind this. It has not caught Him offguard; He is not surprised by any of this. He created Hannah in His own image; He knew her before she was formed in Lori’s womb. He knows how many tiny hairs are on her head. We are continually presented with scientific facts throughout this experience. There is a big difference between FACTS and TRUTH. FACTS change as science and technology get better and better. The TRUTH of the Word of God is everlasting and unchanging. We choose to stand on the TRUTH of the Word of God!
“I am the Lord, who heals you.” Exodus 15:26
“For I know the plans I have for you,” declares the Lord, “plans to prosper you and not to harm you, plans to give you hope and a future. Then you will call upon me and come and pray to me, and I will listen to you. You will seek me and find me when you seek me with all your heart.” Jeremiah 29:11-13
But he said to me, “My grace is sufficient for you, for my power is made perfect in weakness.” 2 Corinthians 12:9
As Jesus was walking along, he saw a man who had been blind from birth. “Rabbi,” his disciples asked him, “why was this man born blind? Was it because of his own sins or his parents’ sins?” “It was not because of his sins or his parents’ sins,” Jesus answered. “This happened so the power of God could be seen in him.” John 9:1-3
Surely he took up our infirmities and carried our sorrows, yet we considered him stricken by God, smitten by him, and afflicted. But he was pierced for our transgressions, he was crushed for our iniquities; the punishment that brought us peace was upon him, and by his wounds we are healed. Isaiah 53:4-5