Hannah is doing great! She saw her pediatrician on Thursday, and he said that she looked great! The only thing they advised is that we try to feed her more. She is still very light for her age, but that’s ok. Dilated Cardiomyopathy patients gain weight more slowly than other kids. She seems to be taking in a little more formula per day now. It’s so good to see her woof down everything we give her! I can remember back in December when things were so bad, when she wasn’t eating hardly anything at all. Wow, we have come a long way, and it’s all due to the grace of God. He has blessed us so much more than we could ever imagine. He has walked with us through this entire experience, giving us peace and strengthening our faith. Our child is a daily reminder that there IS a God in Heaven who looks after His children!
Lori and Hannah took a little road trip this weekend to Beaumont to visit her mimi and pawpaw. She hasn’t been to visit since November, before all this heart stuff happened. Dad is a little lonely without the giggles and smiles from his girls, but I’m getting to catch up on a bunch of stuff I needed to do (namely work). Needless to say, I’d much rather have my girls! We made sure with Hannah’s cardiologist that it was ok for her to go, and he said “sure”. He even emailed me yesterday afternoon to make sure they got there ok! It is such a blessing to be able to know your child’s doctors as well as we do. We know that God specifically placed him in our lives to take care of Hannah. I can’t say enough good things about him and his staff. You should see all the nurses’ eyes light up as soon as Hannah walks through their office door!
Hannah has started crawling!!! She only takes a few little “crawly” steps at a time, but she can definitely crawl! I guess it’s time to finish baby-proofing the house, although I know that Lori doesn’t let Hannah leave her sight for one second out of the day.
We are so blessed. I just keep thinking about our journey over these past 4 months and wonder how people get through something like this without having the assurance that God is in control. Yeah it’s hard to give Hannah her medicines. She HATES them and cries the entire time. But we just thank God every time, because we know how much worse it could be right now. Through the storms we go through every day, God strengthens us. His grace is sufficient — that’s all we need. As long as God is in control, everything is going to be fine.
I also want to thank you all again for all the prayers you’ve prayed in the last 4 months for Hannah, and ask for your continued prayers for her heart function to continue to increase. We have our next cardiology appointment on Tuesday. I don’t think they’re going to do an ECHO and measure her function, but I do know that they’re going to tweak the dosages of a few of her medicines. Please continue to pray that her heart function would continue to improve! Now that her entire heart is contracting the way it should, we are expecting the improvements in her heart function to improve even more. We pray for that day when we go to the cardiologist and they do an ECHO which shows her heart function has completely returned. We WILL see that day, because Jesus has already won the victory, and He is in control!